The Tie That Binds and Heals:
Families' Life Experiences with Mental Illness
Prevalence of Mental Illness
22.1% of Americans ages 18 and older (one in five adults) receive a diagnosis of mental illness in a given year (NIMH).
Effects of mental illness touch many families (one in four) almost 50% of the United States population.
66% of individuals diagnosed with mental illness live with a family member without adequate support services.
Even when individuals live separately, 60% of families continue to provide time, money, and social support on a daily or weekly basis.
Statement of the Problem ... Families are the vital link between home and community and is the most powerful factor affecting the outcome of the individual's recovery.
Families are frustrated with a mental health system that is failing to consider their needs.
Families are not included in treatment planning or collaboration efforts.
Families are disappointed in the perceived inadequacy and fragmentation of mental health services.
Families are angered by their negative experiences in working with mental health professionals who continue to blame them.
Consequences to Families
Feelings of guilt and responsibility are intensified.
Feelings of alienation from mental health professionals.
Environmental climate of blame wears down effective family relationships.
Experiences with mental illness weaken their ability to support their family member.
Poor person-environment fit between the complex and challenging needs of individuals diagnosed with mental
illness, their families, and mental health professionals who
are often ill equipped to provide appropriate mental health services - increase objective burdens for families.
Research Questions
What caregiving burdens do family members identify when managing a family member's mental illness?
What types of self-care techniques do family members utilize when managing a family member's mental illness?
What rewards and reciprocities (give and take) of human interaction have family members experienced with their family member diagnosed with mental illness?
From the families' perspective what are their experiences with the mental health system and its services?
From the perspective of mental health professionals, what are their experiences of working with families experiencing mental illness?
From the perspective of families and mental health professionals, how do they define and explain the following concepts and to what extent are these definitions/explanations congruent?
Causation of mental illness
Recovery for individuals diagnosed with mental illness and their family members
THOUGHT TO PONDER
Without continual growth and
progress, such words as
improvement, achievement, and
success have no meaning.
11900 Wayzata Boulevard
Suite 216G
Minnetonka MN 55305-2035 (directions)
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SPEAKING
ENGAGEMENTS
To Be Announced
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Goals of the Research Study
Family member's experiences and perspectives were explored, focusing
on family stressors, coping skills,
and adaptation of families
experiencing mental illness.
Mental health professionals'
experiences and perspectives were
explored, focusing on the challenges
and rewards of working with families experiencing mental illness,
as well as the availability of mental
health services for families.
The concepts about causation and
recovery were examined with
both family members and
mental health professionals.
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Significance of Research Study
Acknowledge families' life experiences.
Acknowledge affects mental illness
has on all family members (parents,
siblings, spouses, offspring).
Provide a "voice" to family members.
Enable mental health professional
to provide quality and effective
mental health programs for families
experiencing mental illness.
Develop educational programs
for families.
Develop training programs for
mental health professionals.
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Wise Mind Connection
Tsze-Kung asked, "Is there on
word which may serve as a rule of
practice for all one's life?"
The Master said, "is not
Reciprocity such a word?
What you do not want done to
yourself, do not do to others."
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