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The Tie That Binds and Heals:
Families' Life Experiences with Mental Illness
Prevalence of Mental Illness
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22.1% of Americans ages 18 and older (one in five adults) receive a diagnosis of mental illness in a given year (NIMH).
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Effects of mental illness touch many families (one in four) almost 50% of the United States population.
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66% of individuals diagnosed with mental illness live with a family member without adequate support services.
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Even when individuals live separately, 60% of families continue to provide time, money, and social support on a daily or weekly basis.
Statement of the Problem ... Families are the vital link between home and community and is the most powerful factor affecting the outcome of the individual's recovery.
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Families are frustrated with a mental health system that is failing to consider their needs.
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Families are not included in treatment planning or collaboration efforts.
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Families are disappointed in the perceived inadequacy and fragmentation of mental health services.
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Families are angered by their negative experiences in working with mental health professionals who continue to blame them.
Consequences to Families
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Feelings of guilt and responsibility are intensified.
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Feelings of alienation from mental health professionals.
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Environmental climate of blame wears down effective family relationships.
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Experiences with mental illness weaken their ability to support their family member.
Poor person-environment fit between the complex and challenging needs of individuals diagnosed with mental illness, their families, and mental health professionals who are often ill equipped to provide appropriate mental health services - increase objective burdens for families. |
Research Questions
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What caregiving burdens do family members identify when managing a family member's mental illness?
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What types of self-care techniques do family members utilize when managing a family member's mental illness?
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What rewards and reciprocities (give and take) of human interaction have family members experienced with their family member diagnosed with mental illness?
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From the families' perspective what are their experiences with the mental health system and its services?
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From the perspective of mental health professionals, what are their experiences of working with families experiencing mental illness?
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From the perspective of families and mental health professionals, how do they define and explain the following concepts and to what extent are these definitions/explanations congruent?
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Thought for Today
Summer is the time when one sheds
one's tensions with one's clothes
and the right kind of day is jeweled
balm for the battered spirit. A few
of those days and you can become
drunk with the belief that all's
right with the world.
~Ada Louise Huxtable
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Expressions
Signs of the Times
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Goals of the Research Study
Family member's experiences and perspectives were explored, focusing on family stressors, coping skills, and adaptation of families experiencing mental illness.
Mental health professionals' experiences and perspectives were explored, focusing on the challenges and rewards of working with families experiencing mental illness, as well as the availability of mental health services for families.
The concepts about causation and recovery were examined with both family members and mental health professionals.
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Significance of Research Study
Acknowledge families' life experiences.
Acknowledge affects mental illness has on all family members (parents, siblings, spouses, offspring).
Provide a "voice" to family members.
Enable mental health professionals to provide quality and effective mental health programs for families experiencing mental illness.
Develop educational programs for families.
Develop training programs for mental health professionals.
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